What is the Nisonger RRTC?
This is a five-year research project looking at the health and function of adults with intellectual and developmental disabilities (IDD).
We hope to learn:
- How adults with IDD can speak up about their health
- What is the number of people with IDD who also have mental health issues
- The ways health affects the lives of people with IDD
- Things that health professionals can do to better listen to their patients with IDD
- How researchers can include people with IDD in studies
How will we do this?
Make health surveys easier to read so people with IDD can speak for themselves
Write new guidelines for health professionals for how to talk to patients with IDD
Include a group of disability experts and research experts to help us design activities. This group will be a Learning Collaborative
The Disability Experience Expert Panel (DEEP) is made up of adults with IDD. They meet to talk about all activities of the center. DEEP members help the RRTC team make sure that our questions are accessible and user-friendly for adults with IDD and that we use the results to help adults with IDD in the best way.
The Research Experience Expert Panel (REEP) is a panel of people who do research and work at academic centers. REEP members help the RRTC team to decide what are the right questions to ask in our studies and how can we make sure the right people get the information.