Study Phase Purpose Process Timeline
Study 1 Give people with intellectual and developmental disabilities (ID/DD) a way to share their health needs with professionals, like doctors or counselors. – Work with our disability and research experts to make health surveys easier to use and understand

– Test new health surveys with 50 adults with ID/DD to see if changing the surveys helped them report their health needs

2018-2020
Study 2 Find out how many adults with ID/DD also have mental health needs. – Give health surveys to adults with ID/DD across 5 states

– Continue testing surveys from Study 1 with adults with ID/DD from 5 states to see if they are working well

– Some people will also interview with a doctor. This will help us know if our surveys are giving us the right information about the health needs of people with ID/DD

2021-2023
Study 3 Make treatment guidelines for mental health professionals, like doctors, counselors, and therapists.  – Look at current research on mental health treatment for people with ID/DD

– Talk with people with ID/DD and mental health professionals to find out which factors of therapy & treatment are helpful

– Use what we learn to make guidelines for professionals to use when they are treating people with ID/DD

2018-2023