Check out the RRTC team’s new paper called “Invisible populations: Who is missing from research in intellectual disability?”
About 41% of adults with ID/DD (intellectual disability and developmental disabilities) are served by state DD systems in the US.
The remaining 59% include individuals who are not getting services or may not be known to the DD system.
Very little is known about the health and well-being of adults in this “hidden population.”
The purpose of this paper is to talk about ideas to: (1) find individuals in this group; and (2) invite them to join health studies.